Informal caregivers, older adults and transportation. Welcome to the 2nd edition of selected caregiver assessment measures. Stroke caregiver outcomes from the telephone assessment and skillbuilding kit task tamilyn bakas, dns, rn, faha, faanassociate professor, indiana university school of nursing, indianapolis, indiana carol j. Bcos abbreviation stands for bakas caregiving outcomes scale. Tamilyn bakas, dns, rn, faha, faanassociate professor. Caregiver life changes were measured by the 15item bakas caregiving outcomes scale addressing changes in social functioning, subjective wellbeing, and physical health as a result of providing.
The original 10item bcos was improved by adding five items addressing financial wellbeing, level of energy, role functioning, physical functioning, and general health. Fifteen trials involving 2479 caregivers with 8 trials judged as having high risk, 4 as unclear risk, and 3 as low risk of bias included subjective caregiver outcomes. Outcomes data are collected at 7days and 90days by trained telephone interviewers. Psychometric properties of a new hf caregiverspecific quality of life hfcql scale were also determined.
After each question, circle how often you feel that way. Time and difficulty of tasks provided by family caregivers of stroke survivors. Validation of the revised bakas caregiving outcomes scale in greek. Caregiver burden is low nine to twelve months after. Depressive symptoms in patients with heart failure. Psychometric testing of the revised 15item bakas caregiving outcomes scale. Pdf validation of the revised bakas caregiving outcomes.
Bakas t, champion v, perkins sm, farran cj, williams ls. Home care nurses rate a familys caregiving outcomes on three scales the frail elder outcome scale, the caregiver outcome scale, and the family outcome scale using a scoring range from 1 least positive outcome to 3 most positive outcome. Of 7 trials assessing caregiver qol, 30 33, 35, 41, 44 three 31, 33, 44 showed benefit in 1 or more qol domain at 1 or more time point. Future studies drawing on the experiences of larger samples of family caregivers are. Ideas from aphasia caregiver and dementia caregiver groups page 5 of 6 reference list bakas, t. Validation of the revised bakas caregiving outcomes scale in greek caregivers of patients with advanced cancer receiving palliative radiotherapy. The new hfcql scale showed potential as a quality outcome measure in hf caregivers, and might be used to screen hf caregivers for poor quality of life. Psychometrics of a new quality of life scale and variables associated with caregiving outcomes. Short version of the burden scale for family caregivers in 20 european languages with this scale, valid assessment of subjective burden among family caregivers is possible all over europe using the same questionnaire. The present study examined the reliability and validity of the bsfcs. Therefore, a distinction between the use of the terms, caregiving and caregiver, in the extant literature is warranted.
Time and difficulty of tasks provided by family caregivers. The purpose of this study was to determine factors associated with hf caregiver depressive symptoms, life changes, and quality of life guided by a conceptual model derived from lazarus and colleagues transactional approach to stress. Functional, psychosocial, and caregiver outcome data. Secondary caregiver outcomes included promis informational support, promis emotional. The impact of the carepartners program on caregiver burden was evaluated by the oberst caregiving burden scale ocbs and bakas caregiving outcomes scale bcos on two oncology units medicaloncology n 17 and blood marrow transplant n 21 at three times. Caregiver outcomes include the bakas caregiving outcomes scale. Short version of the burden scale for family caregivers. Further research using the proposed conceptual model and the hfcql scale is warranted. Among the sociodemographic caregiver variables, interestingly, whether one is a sole or co caregiver for the patient was found to be unrelated to caregiver burden, unlike previous research which suggested that the presence of multiple caregivers led to reduced burden e. The kingston caregiver stress scale kcss 2 abstract the kingston caregiver stress scale is a scale designed to allow a family caregiver to express the level of stress that he or she is currently feeling around the duties of dementia care. Functional independence measure, bakas caregiving outcomes scale, reintegration to normal living index across admission, discharge, and followup. Be sure the caregiver listed at least two items specific to. What is the first thing to do when scoring the bakas caregiving outcomes scale bcos. The most popular abbreviation for bakas caregiving outcomes scale is.
Join a caregiver support group eat a wellbalanced diet see your physician for a wellbeing checkup treat yourself to something fun laugh. A change for the worst in caregivers was associated with improvements in functioning between admission and discharge p bakas caregiving outcomes scale and a demographic sheet were administered to the caregivers. Preparedness is defined as perceived readiness for multiple domains of the. Caregiver burden was assessed using the bakas caregiver outcomes scale. The tasks perceived as most timeconsuming and difficult, which also. Bakas caregiving outcomes scale the bakas caregiving outcomes scale bcos is a reliable and valid 15item questionnaire that measures life changes as a consequence of caregiving for a stroke survivor. Validation of the revised bakas caregiving outcomes scale. Anxiety and depression were selfreported by the caregiver as a physician diagnosis. Psychometric testing of the revised 15item bakas caregiving. The stroke survivors completed the barthel index and the geriatric depression scale. Comprehensive data from the ida project were the basis of the. Revised scale for caregiving selfefficacy steffen et al. An evaluation of the family informal caregiver stroke self. The results in this study demonstrated that the zarit burden interview is a valid and reliable instrument for measuring the burden of caregivers of pwd in singapore.
Burden scale for family caregivers in 20 european languages. Here youll find helpful resources to identify if you are at potential risk for caregiver distress and lists of reliable. What is the abbreviation for bakas caregiving outcomes scale. Oberst caregiving burden scale ocbs and the bakas caregiving outcomes scale bcos assessed caregiver burden. Anxiety and depression associated with caregiver burden in. A resource inventory for practitioners ii about family caregiver alliance family caregiver alliance fca was founded in 1977 to focus attention on and develop. Caregiver hrqol was assessed using the sf12v2, which measures mental mcs and physical pcs components of hrqol. Bakas caregiving outcome scale shows evidence of satisfactory. Pdf validation of the revised bakas caregiving outcomes scale in. Family caregivers of stroke survivors experience more depression, emotional problems, social inactivity, and general illhealth than. Factors related to caregiver burden in caregivers of patients. Palliative care and patient and caregiver outcomes jama. To evaluate the impact of the family informal caregiver stroke selfmanagement ficss program on burden and life changes resulting from providing care among family caregivers. The 15item bakas caregiving outcomes scale bcos was used to measure life changes ie, changes in social functioning, subjective wellbeing, and physical health, specifically as a result of provid.
Depressive symptoms in patients with heart failure negatively affect family caregiver outcomes and quality of life show all authors. My vision of the future ability to make plans in the near or distant future, 0. Do you think your own health has suffered because you have been taking care of your relative. Improving quality of life and emotional wellbeing for caregivers of adults with traumatic brain injury. Final analysis will be based on 214 randomized acute stroke.
Nevertheless the combined use of generic and general carer instruments may be a sensible strategy. Using the bakas caregiving outcomes scale, which evaluates changes in the caregivers life as a result of providing care for the patient, 2231 71% reported no significant change, 431 12. Caregiver compares the individuals abilities today with how they were 10 years ago in 16 areas. The 16item hfcql scale, which measures physical, psychological. Depressive symptoms in patients with heart failure negatively affect family caregiver outcomes and quality of life. The instrument has been both self and intervieweradministered.
Informal caregivers of stroke survivors with spasticity for. Crosscultural adaptation of the caregiver reaction assessment for use in brazil with informal caregivers of the elderly examined by a committee of judges, for its semantic, idiomatic, experimental and conceptual equivalencies, in order to establish a preversion brazilian cra, culturally equivalent to the original version. Family caregivers are known to experience many negative outcomes as a result of providing care for a stroke survivor after discharge to the home setting bakas, 2009. Has your social life, eg with family and friends, been lessened. Pilot study results 5 main messages supported by a multistakeholder advisory, our objective was to develop and test an online survey of the familyfriend caregiver experience in ontario that would provide essential information to government for policy planning and decisionmaking. We studied 31 caregivers of vad patients receiving care at university of california, san diego. Dont guess, assume, lead, or accept responses that do not. Validation of bakas caregiving outcome scale for brazilian. Logistic regression analyses were conducted with anxiety, depression, and the phq9 depression severity categories as a result of each caregiver burden scale. The bakas caregiving outcomes scale and a demographic sheet were administered to the caregivers. Family caregivers of stroke survivors experience more depression, emotional problems, social inactivity, and general illhealth than noncaregiving individuals.
Two primary caregiver level outcome measures include the bakas caregiving outcomes scale bcos and depression phq9. Validated instruments tools, such as the bakas caregiving outcomes scale and oberst caregiving demand and difficulty subscales, were used to measure the caregivers. Measuring the familyfriend caregiver experience in ontario. Farran, dnsc, rn, faanprofessor and the nurses alumni association chair in health and the aging process. Caregiver burden scale questions please, place a tick in the appropriate box. The act of the caregiver precedent is described by caregiving antecedent.
Psychometric testing of the revised 15item bcos using a sample of 147 family caregivers of stroke survivors approximately 4 months after stroke was conducted to determine the quality of. Time and difficulty of tasks provided by family caregivers of stroke. Burden scale for family caregivers in 20 european languages with this scale, valid assessment of subjective burden among family caregivers is possible all over europe using the same questionnaire. The bakas caregiving outcomes scale bcos is an instrument designed to measure life changes in family caregivers of persons with chronic illness. Task difficulty and life changes among stroke family caregivers. Improving quality of life and emotional wellbeing for. Started in 1995, this collection now contains 6767 interlinked topic pages divided into a tree of 31 specialty books and 732 chapters.
Caregiver burden considerably affects the lives of families providing care to people with advanced cancer. Background the burden experienced by family caregivers is the most important caregiver related. The healthrelated quality of life impact of caring for a. The scale was originally developed to measure life changes in family caregivers of stroke survivors, but has also been used in family caregivers of those with heart failure and a variety. Request pdf psychometric testing of the revised 15item bakas caregiving outcomes scale family caregivers of stroke survivors. Bakas caregiving outcomes scale west indian medical journal. This manuscript examines caregiver burden among a small sample of primary caregivers of stroke patients in jamaica. Training informal caregivers of patients with stroke improved patient and caregiver quality of life and reduced costs kalra l, evans a, perez i, et al. The aim of this study was to validate the greek translation of the revised bakas caregiving outcomes scale bcos with a sample of informal caregivers of people with advanced cancer receiving outpatient palliative radiotherapy. Brazilian caregiver version of the apathy scale henrique cerqueira guimaraes1,2, patricia paes araujo fialho1, viviane amaral carvalho1, etelvina lucas dos santos1, paulo caramelli1,2 abstract no brazilian version of a specific scale for evaluating apathy in dementia is available. Subscribing to this logic, caregiver and caregiving equate to the same, when in essence, the terms may represent two entirely different concepts. Validity and reliability of the zarit burden interview in.
Telephone assessment and skillbuilding kit for stroke. The 10item short version of the burden scale for family caregivers bsfcshortbsfcs was developed to provide an economical measure of this variable. By adhering to the principles of pragmatic trials, this trial is designed to inform typical u. Talk with your physician about ways that you can enhance balance in your roles.
Caregivers are often unprepared and overwhelmed with the responsibilities of providing care to stroke survivors, which can lead to negative physical and psychological effects purpose. Family caregivers of stroke survivors experience a variety of negative social, emotional, and healthrelated outcomes as a result of providing care. A convenience sample of 202 stroke survivor caregiver pairs were recruited in the neurosurgery unit from march 2015 to march 2016. A change for the worst in caregivers was associated with improvements in functioning between admission and discharge p bakas caregiving outcomes scale bcos measuring changes in family caregiving outcomes in the stroke population. Improving transitions in acute stroke patients discharged. The primary outcome measure was a composite of the bakas caregiving outcomes scale. To help family caregivers combat this potential for caregiver distress, home instead, inc. The bakas caregiving outcomes scale bcos was originally developed in 1994 to measure life changes in family caregivers of stroke survivors. West indian medical journal bakas caregiving outcomes scale. Caregiver burden is low in ventricular assist device. Indiana universitypurdue university indianapolis iupuithe number of patients with chronic heart failure hf is at an alltime high and the incidence is expected. Analysis for caregiver outcomes primary caregiver outcomes included the bakas caregiver outcome scale bcos and phq9 depression, which were analyzed using the same linear regression model with groupbytime interactions as described above. Community stroke rehabilitation teams csrts provide a communitybased, interdisciplinary approach to stroke rehabilitation.
Carer impact the impact of a disease on a patient is an increasingly important outcome measure in medicine and healthcare. Development and psychometric testing of the bakas caregiving. Assessing the impact of caregiver outcomes on function and. Selecting suitable valid and reliable outcome measures to determine the. Informant questionnaire on cognitive decline in the elderly iqcode. Subjective burden is a central variable describing the situation encountered by family caregivers. Bcos is defined as bakas caregiving outcomes scale very rarely. Our objective was to assess the effectiveness of these teams with respect to client outcomes. Living index across admission, discharge, and followup. This project is supported by the health resources and services administration hrsa of the u.
The 15item bakas caregiving outcomes scale bcos measures caregiver life changes specifically as a result of providing care. Mclennon sm, bakas t, jessup nm, habermann b, weaver mt. Primary patient outcomes include the promis global 10 score a generic quality of life scale, and the patient activation measure pam. The original 10item bcos was improved by adding five items addressing financial wellbeing, level of energy. Nearly always please circle the response the best describes how you feel.
Training informal caregivers of patients with stroke. Depression severity was measured by the patient health questionnaire9 phq9. Functional independence measure, bakas caregiving outcomes scale, reintegration to normal. Selected caregiver assessment measures family caregiver alliance. Psychometric testing of the revised 15 item bakas caregiving outcomes scale. To develop and psychometrically test the bakas caregiving outcomes scale bcos measuring changes in family caregiving outcomes in the stroke population. Measuring the familyfriend caregiver experience in. The 1st edition published in 2002, was the first publication of caregiver assessment tools aggregated for ease of use by researchers and program developers in the field. Using a descriptive design, a convenience sample of 100 hf caregivers was interviewed by telephone using established measures along with the new hfcql scale. To psychometrically test the revised 15item bakas caregiving outcomes scale bcos measuring life changes specifically resulting from providing care.
Validation of the revised bakas caregiving outcomes scale in. Caregiver burden was measured by the oberst caregiving burden scale ocbs and the bakas caregiving outcomes scale bcos. The impact of education on caregiver burden on two. What score on the screening tool indicates a caregiver is experiencing high burden. Further reproduction prohibited without permission. Caregiver burden was measured at 1 year using the relatives stress scale completed by 155 caregivers and the bakas caregiver outcomes scale 143 caregivers. The scale is designed for community living lay caregivers, not institutional care staff. Issues such as quality of life are now widely used in clinical trials and in patient management for assessing morbidity and the impact of treatment. The participants were assessed at three different times by face to face or telephone interview. For this part, we are interested in how confident you are that you can keep up your own activities and also respond to caregiving situations.
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